|
Friendly Life
Down Syndrome Foundation
We, as the families having a child with Down Syndrome
associated for our ìFriendly Life Down Syndrome
Foundationî in 1998, to solve the common problems
that we live with and tha support the families
who needs a friendly help.
The unsatisfactory health support and education
system of Turkey for over 7.5 milions of physically
or mentally handicapped people motivated us to
come together under a formal structure for the
future of our children. For this purpose our application
in 1997, was certified by the government in May
1998.
We accept Down Syndrome as one of the different
faces of life and mankind. With this reference
we try to motive the community to admit our children
as productive individuals with functional constitutional
rights and to communicate with the families having
a Down Syndrome child in Turkey, to associate
a family solidarity.
Mankind, as a social being, puts solidarity and
sharing in to the center of this modern life.
Keeping this mind we call everbody to collaborate
with our foundation or to be a volunteer of our
foundation, as individuals, private or official
organizations.
THE MAIN TARGETS OF FRİENDLY
LİFE DOWN SYNDROME FOUNDATION
- Informing
the community about Down Syndrome and force
the usage of prenatal diagnosis methods within
the country.
- Beginning
from the birth of a child, assuring moral support
to relieve the family. To create a family solidarity
by establishing the communication between them
for a united effort to integrate their children
with the community.
- To maintain a public opinion for the people with
Down syndrome to be equal and productive individuals,
using equal citizenship rigths in the community.
- Try to infom and help the families with imposibilities,
about the contemporary and promising developments
on Down Syndrome. Supporting the families by
introducing them methods for their childís care
and education
- To arrange educational programs of arts sports,
and profession to achieve the
growth of Down Syndrome children.
- To obtain all kinds of useful information and materials
in a library to serve them to the families and
users.To contact foundations, institutions,
associations, organizations etc, to create and
realize associated projects and solutions in
the fields of health care, education and socialization.
- To contact people or organizations with similar
activities through out the world to share their
information and experiences. To organize panels,
seminars and conferences wityh the participation
of experts to distribute the information to
the families and to the community.
SOME OF OUR PROJECTS
- We contact or support the professional experts
who follow up international activities on Down
Syndrome. With their participation several panels
and meetings are organized to get the obsarvations
and impressions on latest developments to increase
the knowledge on Down Syndrome.
- Our "Family Support Programme" with
the collaboration of İstanbul University, Cerrahpaşa
Medical Faculty and participant families of
the foundation is trying to relieve the shock
of the families who faces with Down Syndrome
by assuring moral support. Further, guiding
the family for their childís care as soon as
possible from the birth.
- The information obtained through the internet and
the foreign literature are translated for our
library and together with publications audible
and visual materials are offered to the interested
families and users.
- Info brochures and a monthly bulletin in Turkish
are prepared and send to the families and to
the related institutions.
- Encouraging of press and broadcasting companies are resulted
with many articles and programs on Down Syndrome
to increase the sensibility and the interest
of the community.
Relations established with education and health
organizations and local authorities ended with
permanent services to Down Syndrome children.
In the Foundation Center we have education and
physiotherapy services, together with music and
rhythm courses. Also periodic family meetings
together with experts on special topics are organized.
DEAR PARENTS
- You are informed that you have a Down Syndrome baby.
A child away from your thougths, wishes and
expectations. May be you feel your child is
a stranger and you are not sure where to put
your love, which you have prepared so long with
care.
- Your life is not going to be an easy one, but be
sure that itís going to be a ìlong enjoyable
journeyî. You will find out many feelings, which
you have lost, many times ago. You will find
out of the meaning of ìLOVEî again in a different
aspect.
- You donít have to change your or your familyís life
too much. You are not ALONE and do not hesitate
to get support when you are bored. The experiences
of many parents that passed through the same
roads before will make your life easier and
safer.
- Don'ít forget your child needs love and you
will receive much more when you do so. Like
all children, he needs kindness, friendship,
play and happiness, which you could supply easily
without too much effort.
DON'T FORGET YOU HAVE YOUR
FRIENDS HAND BESIDE YOU, ANY TIME YOU NEED!
|